Interim Memo on the Health Data Hub, health data warehouses, and the ethical questions raised by the collection and processing of Health Big Data - Inserm - Institut national de la santé et de la recherche médicale

Documentation
French (FR)

English (EN)

Other Publications Year : 2022

Interim Memo on the Health Data Hub, health data warehouses, and the ethical questions raised by the collection and processing of Health Big Data

(1, 2) , (1, 3) , (1, 4) , (1) , (1, 5) , (1, 6) , (1, 7) , (1) , (1, 8) , (1, 9) , (1, 10) , (1, 10) , (1, 11) , (1)

1
2
3
4
5
6
7
8
9
10
11

Pierre Lombrail

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Université Paris 13

Israël Nisand

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Université de Strasbourg

Christine Dosquet

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

AP -Comité d'évaluation éthique de l'Inserm

Frédérique Lesaulnier

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Catherine Bourgain

Function : Author
PersonId : 176235
IdHAL : catherine-bourgain
ORCID : 0000-0002-6761-0140
IdRef : 13036603X

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

CERMES3 - Centre de recherche Médecine, sciences, santé, santé mentale, société

Bernard Baertschi

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Université de Genève = University of Geneva

Anne Buisson

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Association François Aupetit

Catherine Cornu

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

François Hirsch

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Inserm - Ethique des sciences de la vie, éthique de la recherche dans les pays du Sud

Christine Lemaitre

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Inserm - Institut Biologie cellulaire, développement et évolution

Sylvie Ledoux

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Inserm - Service Sciences et société

Flavie Mathieu

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Inserm - Service Sciences et société

Isabelle Rémy-Jouet

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Inserm - Assurance qualité, technologies pour la santé

Yamina Sadani

Function : Author

Comité d'éthique de l'Inserm = The Inserm Ethics Committee

Abstract

In October 2020, the Inserm Ethics Committee (CEI) set up a Working Group in response to the questions raised by the decision to entrust the hosting of French National Health Data System (SNDS) data gathered by the Health Data Hub (HDH) to Microsoft through its cloud computing platform Azure. However, the group very quickly had to expand its reflection to include a much broader set of ethical questions raised by the collection and processing of Big Data relating to health data however remotely.

Keywords

IEC Note Inserm Ethics Committee

CEI Note Comité Ethique Inserm

Domains

Ethics

Fichier principal

Vignette du fichier

IEC HDH-HBD Interim Memo January 2022 Anglais.pdf (1.71 Mo)

Origin : Files produced by the author(s)

Nathalie Duchange : Connect in order to contact the contributor

https://www.hal.inserm.fr/inserm-03562180

Submitted on : Tuesday, February 8, 2022-4:59:07 PM

Last modification on : Tuesday, June 6, 2023-5:18:13 PM

Long-term archiving on: Monday, May 9, 2022-8:15:26 PM

Dates and versions

inserm-03562180 , version 1 (08-02-2022)

Identifiers

HAL Id : inserm-03562180 , version 1

Cite

Pierre Lombrail, Israël Nisand, Christine Dosquet, Frédérique Lesaulnier, Catherine Bourgain, et al.. Interim Memo on the Health Data Hub, health data warehouses, and the ethical questions raised by the collection and processing of Health Big Data. 2022. ⟨inserm-03562180⟩

Export

BibTeX TEI Dublin Core DC Terms EndNote Datacite

Collections

INSERM UNIV-PARIS13 CNRS EHESS CERMES3 ETHIQUE SITE-ALSACE CEI SORBONNE-PARIS-NORD UP-SOCIETES-HUMANITES

155 View

125 Download

Share