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Patient-reported outcome measures in hemodialysis patients: results of the first multicenter cross-sectional ePROMs study in France

Abstract : Background: Kidney failure with replacement therapy and hemodialysis are associated with a decrease in quality of life (QOL). Self-reported QOL symptoms are not always prioritized by the medical team, potentially leading to conflicting priorities with patients. Electronic patient-reported outcome measures (ePROMs) allow physicians to better identify these symptoms. The objective was to describe the prevalence of symptoms self-reported by hemodialysis (HD) patients. Methods: A multicenter cross-sectional study was conducted in three HD centers. Patients were included if they were 18 years old or over treated with HD for at least 3 months in a center. Data were collected by the patient via a self-administered ePROMs questionnaire. Data included patient characteristics, post-dialysis fatigue and intensity, recovery time after a session, perceived stress, impaired sleep the day before the dialysis session, current state of health and the change from the past year. A multivariate analysis was conducted to identify relations between symptoms. Results: In total, we included 173 patients with a mean age of 66.2 years, a mean ± SD hemodialysis duration of 48.9 ± 58.02 months. The prevalence of fatigue was 72%. 66% had a high level of stress (level B or C). Recovery time was more than 6 h after a HD session for 25% of patients and 78% declared they had a better or unchanged health status than the previous year. Sleep disturbance was associated with cardiovascular comorbidities (OR 5.08 [95% CI, 1.56 to 16.59], p = 0.007). Conclusions: Fatigue and stress were the main symptoms reported by HD patients. The patient's care teams should better consider these symptoms.
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Submitted on : Friday, December 10, 2021 - 10:13:45 AM
Last modification on : Saturday, December 11, 2021 - 3:33:02 AM
Long-term archiving on: : Friday, March 11, 2022 - 6:37:57 PM


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Abdallah Guerraoui, Mathilde Prezelin-Reydit, Anne Kolko, Marie Lino-Daniel, Charlotte Dumas de Roque, et al.. Patient-reported outcome measures in hemodialysis patients: results of the first multicenter cross-sectional ePROMs study in France. BMC Nephrology, BioMed Central, 2021, 22 (1), pp.357. ⟨10.1186/s12882-021-02551-3⟩. ⟨inserm-03474214⟩



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