Skip to Main content Skip to Navigation
Journal articles

Quality of life of adult Fontan patients

Abstract : BACKGROUND: Progress in the management of complex congenital heart disease (CHD) led to an improvement in survival rates of adults with a Fontan-like circulation. The objective of this study was to assess the subjective health status and quality of life of this population. METHODS AND RESULTS: Patients aged more than 18 years at the time of the study, who underwent a Fontan-like procedure. Subjective health status was assessed by the SF-36 questionnaire and a linear analog scale was used to score patients' self-perception of their quality of life; cardiac and demographic parameters were collected. RESULTS: Among 65 eligible patients, 60 (23 females; mean ± SD age: 25.7 ± 7.2 years) answered the SF-36 questionnaire and 46 of these were interviewed to evaluate their perceived quality of life. Among them, 20 (33.3%) were working full-time and 21 (35%) experienced arrhythmias. The physical SF-36 scores were lower in patients than in the general population (p ≤ 0.05). The New York Hear Association (NYHA) class and occupation were correlated with SF-36 scores of physical activity (respectively, p = 0.0001 and p = 0.025). SF-36 scores of psychological status were associated with the number of drugs and occupation (respectively, p = 0.0001 and p = 0.02). The mean ± SD quality of life score measured using a linear analog scale was 7.02 ± 1.6 and was linked to education and occupation (p ≤ 0.05) but not with cardiac parameters. CONCLUSION: Adult Fontan patients perceive an impaired physical health but report a good overall quality of life. Education and occupation impacts significantly on Fontan patients' quality of life.
Document type :
Journal articles
Complete list of metadata

https://www.hal.inserm.fr/inserm-03327675
Contributor : Laboratoire Carmen Connect in order to contact the contributor
Submitted on : Friday, August 27, 2021 - 1:42:49 PM
Last modification on : Saturday, August 28, 2021 - 3:21:11 AM

Identifiers

Collections

Citation

A. Soufi, M. Gouton, O. Metton, J. Mitchell, Y. F. Bernard, et al.. Quality of life of adult Fontan patients. Cardiology in the Young, Cambridge University Press (CUP), 2021, 31 (1), pp.97-104. ⟨10.1017/s1047951120003431⟩. ⟨inserm-03327675⟩

Share

Metrics

Record views

14