European Association for Neuro-Oncology (EANO) guidelines for palliative care in adults with glioma
Andrea Pace
(1)
,
Linda Dirven
(2, 3)
,
Johan Koekkoek
(2, 3)
,
Heidrun Golla
(4)
,
Jane Fleming
(5)
,
Roberta Rudà
(6)
,
Christine Marosi
(7)
,
Emilie Le Rhun
(8, 9)
,
Robin Grant
(10)
,
Kathy Oliver
(11)
,
Ingela Oberg
(12)
,
Helen Bulbeck
(13)
,
Alasdair Rooney
(14)
,
Roger Henriksson
(15, 16)
,
H Roeline W Pasman
(17)
,
Stefan Oberndorfer
(18)
,
Michael Weller
(19)
,
Martin Taphoorn
(2, 3)
1
National Cancer Institute Regina Elena [Rome, Italy]
2 LUMC - Leiden University Medical Center
3 HMC - Haaglanden Medical Center [La Haye, Pays-Bas]
4 University Hospital of Cologne [Cologne]
5 University Hospital Waterford [Waterford, Ireland]
6 City of Health and Science University Hospital [Turin, Italy]
7 Medizinische Universität Wien = Medical University of Vienna
8 UNICANCER/Lille - Centre Régional de Lutte contre le Cancer Oscar Lambret [Lille]
9 CHRU Lille - Centre Hospitalier Régional Universitaire [CHU Lille]
10 Western General Hospital [Edinburgh, UK]
11 International Brain Tumour Alliance [Tadworth, UK]
12 CUH - Cambridge University Hospitals - NHS
13 Brainstrust, Cowes [Isle of Wight, UK]
14 Edin. - University of Edinburgh
15 Regional Cancer Center Stockholm Gotland [Stockholm, Sweden]
16 Umeå University
17 VU University Medical Center [Amsterdam]
18 St. Pölten University of Applied Sciences
19 UZH - Universität Zürich [Zürich] = University of Zurich
2 LUMC - Leiden University Medical Center
3 HMC - Haaglanden Medical Center [La Haye, Pays-Bas]
4 University Hospital of Cologne [Cologne]
5 University Hospital Waterford [Waterford, Ireland]
6 City of Health and Science University Hospital [Turin, Italy]
7 Medizinische Universität Wien = Medical University of Vienna
8 UNICANCER/Lille - Centre Régional de Lutte contre le Cancer Oscar Lambret [Lille]
9 CHRU Lille - Centre Hospitalier Régional Universitaire [CHU Lille]
10 Western General Hospital [Edinburgh, UK]
11 International Brain Tumour Alliance [Tadworth, UK]
12 CUH - Cambridge University Hospitals - NHS
13 Brainstrust, Cowes [Isle of Wight, UK]
14 Edin. - University of Edinburgh
15 Regional Cancer Center Stockholm Gotland [Stockholm, Sweden]
16 Umeå University
17 VU University Medical Center [Amsterdam]
18 St. Pölten University of Applied Sciences
19 UZH - Universität Zürich [Zürich] = University of Zurich
Linda Dirven
- Fonction : Auteur
- PersonId : 799515
- ORCID : 0000-0001-9157-9895
Michael Weller
- Fonction : Auteur
- PersonId : 781346
- ORCID : 0000-0002-1748-174X
- IdRef : 194357112
Résumé
Patients with glioma present with complex palliative care needs throughout their disease trajectory. The life-limiting nature of gliomas and the presence of specific symptoms related to neurological deterioration necessitate an appropriate and early palliative care approach. The multidisciplinary palliative care task force of the European Association of Neuro-Oncology did a systematic review of the available scientific literature to formulate the best possible evidence-based recommendations for the palliative care of adult patients with glioma, with the aim to reduce symptom burden and improve the quality of life of patients and their caregivers, particularly in the end-of-life phase. When recommendations could not be made because of the scarcity of evidence, the task force either used evidence from studies of patients with systemic cancer or formulated expert opinion. Areas of palliative care that currently lack evidence and thus deserve attention for further research are fatigue, disorders of behaviour and mood, interventions for the needs of caregivers, and timing of advance care planning.