European Network of Bipolar Research Expert Centre (ENBREC): a network to foster research and promote innovative care - Archive ouverte HAL Access content directly
Journal Articles International Journal of Bipolar Disorders Year : 2013

European Network of Bipolar Research Expert Centre (ENBREC): a network to foster research and promote innovative care

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Ole Andreassen
  • Function : Author
  • PersonId : 940385
Guy Goodwin
  • Function : Author
  • PersonId : 940387
Eduard Vieta
  • Function : Author
  • PersonId : 940388
Willem Nolen
  • Function : Author
  • PersonId : 940389
Lars Vedel Kessing
  • Function : Author
  • PersonId : 940390
Jan Scott
  • Function : Author
  • PersonId : 934693
Michael Bauer
  • Function : Author
  • PersonId : 940391

Abstract

Bipolar disorders rank as one of the most disabling illnesses in working age adults worldwide. Despite this, the quality of care offered to patients with this disorder is suboptimal, largely due to limitations in our understanding of the pathology. Improving this scenario requires the development of a critical mass of expertise and multicentre collaborative projects. Within the framework of the European FP7 programme, we developed a European Network of Bipolar Research Expert Centres (ENBREC) designed specifically to facilitate EU-wide studies. ENBREC provides an integrated support structure facilitating research on disease mechanisms and clinical outcomes across six European countries (France, Germany, Italy, Norway, Spain and the UK). The centres are adopting a standardised clinical assessment that explores multiple aspects of bipolar disorder through a structured evaluation designed to inform clinical decision-making as well as being applicable to research. Reliable, established measures have been prioritised, and instruments have been translated and validated when necessary. An electronic healthcare record and monitoring system (e-ENBREC©) has been developed to collate the data. Protocols to conduct multicentre clinical observational studies and joint studies on cognitive function, biomarkers, genetics, and neuroimaging are in progress; a pilot study has been completed on strategies for routine implementation of psycho-education. The network demonstrates 'proof of principle' that expert centres across Europe can collaborate on a wide range of basic science and clinical programmes using shared protocols. This paper is to describe the network and how it aims to improve the quality and effectiveness of research in a neglected priority area.
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Dates and versions

inserm-00814543 , version 1 (17-04-2013)

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  • HAL Id : inserm-00814543 , version 1

Cite

Chantal Henry, Ole Andreassen, Angelo Barbato, Jacques Demotes-Mainard, Guy Goodwin, et al.. European Network of Bipolar Research Expert Centre (ENBREC): a network to foster research and promote innovative care. International Journal of Bipolar Disorders, 2013, 1 (1), pp.2. ⟨inserm-00814543⟩

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