M. Boly, M. Faymonville, C. Schnakers, P. Peigneux, B. Lambermont et al., Perception of pain in the minimally conscious state with PET activation: an observational study, The Lancet Neurology, vol.7, issue.11, pp.1013-1033, 2008.
DOI : 10.1016/S1474-4422(08)70219-9

K. Vissers and J. Hasselaar, Palliative Sedation: Need for Consensus Guidelines and Standards, Archives of Internal Medicine, vol.170, issue.5, pp.494-499, 2010.
DOI : 10.1001/archinternmed.2010.12

T. Quill, B. Lo, and D. Brock, Palliative Options of Last Resort, JAMA, vol.278, issue.23, pp.2099-104, 1997.
DOI : 10.1001/jama.1997.03550230075041

A. Baumann, G. Audibert, F. Claudot, and L. Puybasset, Ethics review: End of life legislation ??? the French model, Critical Care, vol.13, issue.1, p.204, 2009.
DOI : 10.1186/cc7148

J. Leonetti, Rapport de la Mission d'évaluation de la loi n° 2005-370 du 22 avril 2005 relative aux droits des malades et à la fin de vie, 2008.

K. Payne, R. Taylor, C. Stocking, and G. Sachs, Physicians' Attitudes about the Care of Patients in the Persistent Vegetative State: A National Survey, Annals of Internal Medicine, vol.125, issue.2, pp.104-114, 1996.
DOI : 10.7326/0003-4819-125-2-199607150-00004

A. Demertzi, C. Schnakers, D. Ledoux, C. Chatelle, M. Bruno et al., Different beliefs about pain perception in the vegetative and minimally conscious states: a European survey of medical and paramedical professionals, Prog Brain Res, vol.177, pp.329-367, 2009.
DOI : 10.1016/S0079-6123(09)17722-1

C. Schnakers and N. Zasler, Assessment and Management of Pain in Patients With Disorders??of??Consciousness, PM&R, vol.7, issue.11, pp.620-626, 2007.
DOI : 10.1016/j.pmrj.2015.09.016

G. Rees and S. Edwards, Is pain in the brain?, Nature Clinical Practice Neurology, vol.323, issue.2, pp.76-83, 2009.
DOI : 10.1038/ncpneuro1001

H. Buiting, J. Van-delden, J. Rietjens, B. Onwuteaka-philipsen, J. Bilsen et al., Forgoing Artificial Nutrition or Hydration in Patients Nearing Death in Six European Countries, Journal of Pain and Symptom Management, vol.34, issue.3, pp.305-319, 2007.
DOI : 10.1016/j.jpainsymman.2006.12.006

J. Van-delden, Terminal sedation: source of a restless ethical debate, Journal of Medical Ethics, vol.33, issue.4, pp.187-195, 2007.
DOI : 10.1136/jme.2007.020446

J. Cowan and D. Walsh, Terminal sedation in palliative medicine ??? definition and review of the literature, Supportive Care in Cancer, vol.9, issue.6, pp.403-410, 2001.
DOI : 10.1007/s005200100235

J. Billings and S. Block, Slow euthanasia, J Palliat Care, vol.12, pp.21-30, 1996.

M. Rady and J. Verheijde, Continuous deep sedation until death: palliation or physician-assisted death? Am J Hosp Palliat Care, pp.205-219, 2010.

B. Mount, Morphine drips, terminal sedation, and slow euthanasia: definitions and facts, not anecdotes, J Palliat Care, vol.12, pp.31-38, 1996.

T. Morita, J. Tsunoda, S. Inoue, and S. Chihara, Do hospice clinicians sedate patients intending to hasten death?, J Palliat Care, vol.15, pp.20-23, 1999.

T. Quill, The Ambiguity of Clinical Intentions, New England Journal of Medicine, vol.329, issue.14, pp.1039-1079, 1993.
DOI : 10.1056/NEJM199309303291414

T. Quill, R. Dresser, and D. Brock, The Rule of Double Effect ??? A Critique of Its Role in End-of-Life Decision Making, New England Journal of Medicine, vol.337, issue.24, pp.1768-71, 1997.
DOI : 10.1056/NEJM199712113372413

J. Boyle, Who is Entitled to Double Effect?, Journal of Medicine and Philosophy, vol.16, issue.5, pp.475-94, 1991.
DOI : 10.1093/jmp/16.5.475

J. Boyle, Medical ethics and double effect: the case of terminal sedation, Theor Med Bioeth, vol.25, pp.51-60, 2004.

D. Sulmasy and E. Pellegrino, The Rule of Double Effect, Archives of Internal Medicine, vol.159, issue.6, pp.545-50, 1999.
DOI : 10.1001/archinte.159.6.545

R. Hunt, Taking responsibility for affecting the time of death, Palliative Medicine, vol.13, issue.5, pp.439-480, 1999.
DOI : 10.1191/026921699673775704

J. Bishop, Euthanasia, efficiency, and the historical distinction between killing a patient and allowing a patient to die, Journal of Medical Ethics, vol.32, issue.4, pp.220-224, 2006.
DOI : 10.1136/jme.2005.013839

Y. Kamisar, Can Glucksberg survive Lawrence? Another look at the end of life and personal automony, Issues Law Med, vol.24, pp.95-119, 2008.

L. Kaldjian, J. Jekel, J. Bernene, G. Rosenthal, M. Vaughan-sarrazin et al., Internists' attitudes towards terminal sedation in end of life care, Journal of Medical Ethics, vol.30, issue.5, pp.499-503, 2004.
DOI : 10.1136/jme.2003.004895

R. Magnusson, The Devil's Choice: Re-Thinking Law, Ethics, and Symptom Relief in Palliative Care, The Journal of Law, Medicine <html_ent glyph="@amp;" ascii="&"/> Ethics, vol.25, issue.3, pp.559-69, 2006.
DOI : 10.1016/S0885-3924(01)00258-5

C. Schnakers, A. Vanhaudenhuyse, J. Giacino, M. Ventura, M. Boly et al., Diagnostic accuracy of the vegetative and minimally conscious state: Clinical consensus versus standardized neurobehavioral assessment, BMC Neurology, vol.22, issue.10, p.35, 2009.
DOI : 10.1080/02699050802403557

S. Glick, Terminal Sedation in the Netherlands, Annals of Internal Medicine, vol.141, issue.12, pp.966-966, 2004.
DOI : 10.7326/0003-4819-141-12-200412210-00016

D. Orentlicher, The Supreme Court and Physician-Assisted Suicide ??? Rejecting Assisted Suicide but Embracing Euthanasia, New England Journal of Medicine, vol.337, issue.17, pp.1236-1245, 1997.
DOI : 10.1056/NEJM199710233371713

L. Jansen and D. Sulmasy, Sedation, Alimentation, Hydration, and Equivocation: Careful Conversation about Care at the End of Life, Annals of Internal Medicine, vol.136, issue.11, pp.845-854, 2002.
DOI : 10.7326/0003-4819-136-11-200206040-00014

H. Buiting, A. Van-der-heide, B. Onwuteaka-philipsen, M. Rurup, J. Rietjens et al., Physicians' labelling of end-of-life practices: a hypothetical case study, Journal of Medical Ethics, vol.36, issue.1, pp.24-33, 2010.
DOI : 10.1136/jme.2009.030155

M. Gillick, Terminal sedation: an acceptable exit strategy? Ann Intern Med, pp.236-243, 2004.

J. Rietjens, A. Van-der-heide, A. Vrakking, B. Onwuteaka-philipsen, P. Van-der-maas et al., Physician Reports of Terminal Sedation without Hydration or Nutrition for Patients Nearing Death in the Netherlands, Annals of Internal Medicine, vol.141, issue.3, pp.178-85, 2004.
DOI : 10.7326/0003-4819-141-3-200408030-00006

T. Quill, B. Lee, and S. Nunn, Palliative Treatments of Last Resort: Choosing the Least Harmful Alternative, Annals of Internal Medicine, vol.132, issue.6, pp.488-93, 2000.
DOI : 10.7326/0003-4819-132-6-200003210-00011

T. Quill and I. Byock, Responding to Intractable Terminal Suffering, Annals of Internal Medicine, vol.133, issue.7, pp.408-422, 2000.
DOI : 10.7326/0003-4819-133-7-200010030-00022

G. Kootstra, J. Daemen, and A. Oomen, Categories of non-heart-beating donors, Transplant Proc, vol.27, pp.2893-2897, 1995.

A. Costa, S. I. Castellvi, J. Spagnolo, A. Comoretto, N. Laffitte et al., A Colloquium on the Congress ???A Gift for Life. Considerations on Organ Donation???, Transplantation, vol.88, issue.Supplement, pp.108-58, 2009.
DOI : 10.1097/TP.0b013e3181b66576

J. Vincent, Les aspects éthiques du NHBD : position des réanimateurs belges, Enjeux éthiques en réanimation, pp.587-590

P. Higgins and T. Altilio, Palliative Sedation: An Essential Place for Clinical Excellence, Journal of Social Work in End-Of-Life & Palliative Care, vol.14, issue.4, pp.3-30, 2007.
DOI : 10.1177/0011000000284003

J. Rietjens, P. Van-der-maas, B. Onwuteaka-philipsen, J. Van-delden, and A. Van-der-heide, Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?, Journal of Bioethical Inquiry, vol.28, issue.6, pp.271-283, 2009.
DOI : 10.1007/s11673-009-9172-3

. Baumann, The ethical and legal aspects of palliative sedation in severely brain-injured patients: a French perspective, Philosophy, Ethics, and Humanities in Medicine, vol.6, issue.1, p.4, 2011.
DOI : 10.1186/1747-5341-6-4

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