P. S. Appelbaum, L. H. Roth, and C. Lidz, The therapeutic misconception: Informed consent in psychiatric research, International Journal of Law and Psychiatry, vol.5, issue.3-4, pp.3-4, 1982.
DOI : 10.1016/0160-2527(82)90026-7

L. Baret and B. Godard, Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles, European Journal of Human Genetics, vol.8, issue.11, pp.1127-1132, 2011.
DOI : 10.1002/cncr.11391

V. Collard and C. Taéron, Infection ?? VIH/sida : aspects ??thiques des essais cliniques et du consentement ??clair??, Th??rapie, vol.59, issue.4, pp.407-411, 2004.
DOI : 10.2515/therapie:2004071

M. Dixon-woods, C. Jackson, K. C. Windridge, and S. Kenyon, Receiving a summary of the results of a trial: qualitative study of participants' views, BMJ, vol.332, issue.7535, pp.332-206, 2006.
DOI : 10.1136/bmj.38675.677963.3A

C. V. Fernandez, E. Kodish, and C. Weijer, Informing Study Participants of Research Results: An Ethical Imperative, IRB: Ethics and Human Research, vol.25, issue.3, pp.12-19, 2003.
DOI : 10.2307/3564300

B. M. Knoppers, Y. Joly, J. Simard, and F. Durocher, The emergence of an ethical duty to disclose genetic research results: International perspectives, European Journal of Human Genetics, issue.11, pp.14-1170, 2006.

J. Lazovski, M. Losso, B. Krohmal, E. J. Emanuel, C. Grady et al., Benefits and Burdens of Participation in a Longitudinal Clinical Trial, Journal of Empirical Research on Human Research Ethics, vol.4, issue.3, pp.89-97, 2009.
DOI : 10.1525/jer.2009.4.3.89

L. Moing, V. Thiébaut, R. Chêne, G. Leport, C. Cailleton et al., Predictors of long-term increase in CD4(+) cell counts in human immunodeficiency virus-infected patients receiving a protease inhibitor-containing antiretroviral regimen, Journal of Infectious Diseases, vol.185, issue.4, pp.471-480, 2002.

S. D. Macneil and C. V. Fernandez, Offering results to research participants, BMJ, vol.332, issue.7535, pp.188-189, 2006.
DOI : 10.1136/bmj.332.7535.188

C. A. Mccarty, A. Garber, J. C. Reeser, and N. C. Fost, Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank, American Journal of Medical Genetics Part A, vol.10, issue.4, pp.155-737, 2011.
DOI : 10.1002/ajmg.a.33896

F. A. Miller, R. Z. Hayeems, L. Li, and J. P. Bytautas, What does ???respect for persons??? require? Attitudes and reported practices of genetics researchers in informing research participants about research, Journal of Medical Ethics, vol.38, issue.1, 2011.
DOI : 10.1136/jme.2010.041350

G. Moutel, N. Duchange, F. Raffi, L. I. Sharara, I. Théodorou et al., Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients, European Journal of Human Genetics, vol.11, issue.9, pp.1055-1062, 2005.
DOI : 10.1038/sj.ejhg.5201450
URL : https://hal.archives-ouvertes.fr/inserm-00000049

P. Msellati, M. Dupon, P. Morlat, D. Lacoste, J. L. Pellegrin et al., A cohort study of 89 HIV-1 -infected adult patients contaminated by blood products, Aids, vol.4, issue.11, pp.4-1105, 1981.
DOI : 10.1097/00002030-199011000-00008

J. Murphy, J. Scott, D. Kaufman, G. Geller, L. Leroy et al., Public Expectations for Return of Results from Large-Cohort Genetic Research, The American Journal of Bioethics, vol.6, issue.11, pp.36-43, 2008.
DOI : 10.1001/archinte.162.13.1457

D. I. Shalowitz and F. G. Miller, Communicating the results of clinical research to participants: Attitudes, practices , and future directions Empirical evaluation of the need for " on-going consent " in clinical research, PLoS Medicine Insight Esprit Group. AIDS, vol.5, issue.251, pp.107-114, 2008.